I should update this BLOG more often because so many things happened last days. We moved to a new place. A nice little flat, 4.th floor and a small balcony, Vil still not finished recovering, he is weak and the weight loss takes its toll. He is tired all day, no power and it was… Read more Moving within Osterburg
Category: Gesundheit
Eine lange Zeit ging es Vil manchmal echt beschissen. Er litt jahrelang unter einer „ungeklärten Kondition“ und keiner wusste was mit ihm los war. Das fing vor mehr als dreißig Jahren an und ohne Grund wurde ihm plötzlich übel, und zwar von der feinsten Version. Ich möchte hier nicht zu viele Details teilen, aber dann ging es ihm gar nicht gut und er landete nicht nur einmal mehr tot als lebendig auf der Intensivstation. Kein Spaß. Vor fast zwei Jahren sprang er dann dem Tod vielleicht endgültig von der Schippe, aber dazu später mehr.
Rehabilitation Centre Moelln
I need to attend a rehabilitation program. There I learned what and how to eat and how to gain weight without hurting myself. Three weeks of lessons, extra care, presentations, and additionally a mixture of swimming pool, massage, gymnastics or yoga, good food.
Have a nice day!
Well, well, well… The good news. The”re-wiring” worked. My digestive system seems to completely start up and slowly I can eat a little. Unfortunately, there is still the “occasional” nausea, but it gets better. I lost plenty of weight and I was never a big guy, more tall and skinny and now I am a… Read more Have a nice day!
The recovery process
It’s good to be home, but it’s not easy. I am exhausted, every task lasts longer and I am already happy when I am able to walk Indy to the second bench. I never imagined that it will be so hard to arrange life, doing the dishes or just get some bread. Except for one… Read more The recovery process
Back Home
Now I am back at home and wait for the rehabilitation treatment will start. I need to learn what I can eat, try to gain weight and an insulin pump needs to be adjusted to me. All these needs its time and I need to be patient. Feeling better. The loo works and I am… Read more Back Home
Needles
Sugar-Coaster
Now, I need to tackle my blood sugar levels. As my digestive system slowly restarts and I need to learn how to adjust my diet to the new situation. It’s a try and error operation. I do have a little guidance, but now I need to combine a diabetes diet with a low ballast one.… Read more Sugar-Coaster
June 2019 Gallery
I am a cyborg!
I carry a new and fancy RFC Blood Sugar Sensor. No more blood needed to measure my actual status. Now I am directly connected to my smartphone and with a push of a button, I am up to date. Now an app monitors my sugar level in real-time and warns me if my levels get… Read more I am a cyborg!
No more “Nose-Tube”
After ten days they removed the “nose-tube” and I got a little freedom back. Still connected to a “ZVK” (Zentraler Venen Katheter) in my neck. Sensors for my heart rate and …
As time goes by
I am still at the ICU and I realize that the recovery process will last longer than expected, but there is hope because the recovery process improves a little bit day by day. No more heavy pain medication needed, the sleep is ok and I had my first successful visit to the loo for days.… Read more As time goes by
Lab Results
Today my doctor received the lab results and she rushed into my room to tell me the good news. They checked some of the removed tissue because they suspected cancerous cells, but fortunately there weren’t. “It’s your second birthday today. Mark the date.” The doctor smiled at me, tapped my shoulder and rushed out of… Read more Lab Results
Complications
Unfortunately, my digestive system isn’t restarting fast enough. The adjustment to the rewiring of my digestive system was not a small task and a common side effect is a slow digestive system. Longer ICU Stay It was planned that I need to stay only for three days at the ICU, but a few days later my… Read more Complications
Colours Inside! :)
After the operation, there was pain and I asked the nurse: “Is there anything with colours inside to help me to be as comfortable as possible for the moment?” She smiled at me and replied. “I think I can help you with that. I will need to ask the doctor for a prescription, but that’s… Read more Colours Inside! 🙂
Today is the day! – “Whipple Procedure”
On Friday morning the nurse woke me up at 06:00, to have a shower and shave my belly. Dressing up in the blue theatre clothing. Now it starts to get very real. Unfortunately, I am not allowed to have any coffee and I am very nervous. To the theatre I was driven in my bed… Read more Today is the day! – “Whipple Procedure”
DRK Hospital Berlin Koepenick
I was picked up by a cab in the morning, to be driven to Berlin Koepenick DRK Hospital. A well-known specialist centre for such procedures. Tests and preparation The next days, they took blood, put me into different machines to look inside me. The pictures made with X-Rays, MRT and ultrasonic. The surgeon visited and… Read more DRK Hospital Berlin Koepenick
Trip to Berlin
DRK Hospital Berlin Köpenick
It’s “Teatime”! – Hospital Seehausen
A dreadful day! Vil woke up and immediately felt that something is seriously wrong. He is used to regular nausea and pain in the morning and most of the time he can fix himself with some Primperan, MCP or something else, but today was different, something was seriously wrong. He went to his GP to… Read more It’s “Teatime”! – Hospital Seehausen
Propofol – Vil & M.J. united
We got up very early and I was brought to a friend of us, while Vil went to the hospital. Vil checked in, got ‘prepared’, for the procedure and at 09:00 he was brought into the theatre and connected to all cables and tubes. Then the ‘Sleepy Guy’ arrived and started to send him to… Read more Propofol – Vil & M.J. united
OLVG Amsterdam
Bubbles
